SHEILA – UNLOCKING THE TREATMENT FOR PKU(Published by Brewin Books) By Anne Green In 1951, at two years of age, Sheila Jones was diagnosed with Phenylketonuria (PKU). With no treatment available, Sheila’s mother Mary persevered until she obtained help from three pioneering doctors at Birmingham Children’s Hospital. They worked tirelessly to prepare a special formula for Sheila making her the first person in the world to receive dietary treatment for PKU. In this new book to be published in October 2020 Anne tells the remarkable story of Sheila and her important legacy – the introduction of newborn screening and worldwide …
First winner of the Sheila Jones Award
Laura Petreuș is the first winner of the Sheila Jones Award. An patient advocate award launched by the E.S.PKU in 2017. You can learn more about the award on our dedicated page: Sheila Jones Award. Be sure to check back at a later time to view the award ceremony that took place at #ESPKU2018.